Pedal Power Fundraiser | Seven Days Vermont

Please support our work!

Donate  Advertise

Pedal Power Fundraiser 

Published July 28, 2015 at 10:00 a.m.

click to enlarge Left to right: Ben Johnson, Katrina Sliwka and their daughter Delaney - COURTESY OF BEN JOHNSON & KATRINA SLIWKA
  • COURTESY OF BEN JOHNSON & KATRINA SLIWKA
  • Left to right: Ben Johnson, Katrina Sliwka and their daughter Delaney

Mountain bikers hit the trails in Huntington at the end of this month for Del's Ride, an event to raise money and awareness to fight Alternating Hemiplegia of Childhood (AHC), a rare and painful neurological disorder. Participants, who are asked to raise at least $75, can choose from loops that range from five to 25 miles. There's also a short trail ride for kids. All proceeds go to the nonprofit Cure AHC.

Ride organizers Ben Johnson and Katrina Sliwka of Essex Junction are the parents of 6-year-old Delaney, who was diagnosed with AHC when she was 10 months old and epilepsy when she was 4. AHC is characterized by recurring episodes of temporary paralysis that often affect one side of the body and last minutes, hours or days. There's no known cure or completely effective treatment.

"The trails for Del's Ride are really challenging, and it speaks to what everyday life is like for Delaney," Sliwka says of her oldest daughter. "She is the hardest worker I've ever known."

Del's ride takes place on Sunday, August 30, from noon to 6 p.m. at the Sleepy Hollow Inn Ski & Bike Center in Huntington. Rain date, September 20. To register, visit delsride.org. Prefer to eat for a cause? On Wednesday, August 12, Burlington's Bluebird Barbecue will donate 10 percent of evening sales to Del's Ride.

This article was originally published in Seven Days' monthly parenting magazine, Kids VT.

Got something to say? Send a letter to the editor and we'll publish your feedback in print!

More By This Author

About The Author

Mary Ann Lickteig

Mary Ann Lickteig

Bio:
Mary Ann Lickteig is a Seven Days culture staff writer based in Burlington. Prior to joining the writing staff, she was a contributing editor to both Seven Days and Kids VT. She previously worked as a reporter for the Burlington Free Press.

Comments


Comments are closed.

From 2014-2020, Seven Days allowed readers to comment on all stories posted on our website. While we've appreciated the suggestions and insights, right now Seven Days is prioritizing our core mission — producing high-quality, responsible local journalism — over moderating online debates between readers.

To criticize, correct or praise our reporting, please send us a letter to the editor or send us a tip. We’ll check it out and report the results.

Online comments may return when we have better tech tools for managing them. Thanks for reading.

Latest in Kids VT

Keep up with us Seven Days a week!

Sign up for our fun and informative
newsletters:

All content © 2024 Da Capo Publishing, Inc. 255 So. Champlain St. Ste. 5, Burlington, VT 05401

Advertising Policy  |  Privacy Policy  |  Contact Us  |  About Us  |  Help
Website powered by Foundation